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  1. K

    My dad is newly diagnosed but his symptoms confuse me

    Thanks Tillie. I wouldn't say his speech is slurred. Maybe I'm just so used to him and it was so gradual that I haven't noticed, but I don't think its slurred at all. His voice is fainter than it used to be. This is a symptom of kennedys as well. He began having swallow and speech issues about a...
  2. K

    My dad is newly diagnosed but his symptoms confuse me

    I have looked up kennedys after the doctor mentioned it as something they will test for and it seems a fair fit to me. We are waiting for those results to come back, but the doctor said she felt it was unlikely because it follows the males in the family and we arent aware of any others with it...
  3. K

    My dad is newly diagnosed but his symptoms confuse me

    Dad has been diagnosed with bulbar onset ALS. His voice is very weak and his swallow isn't good, though he refuses to get a feeding tube. He is still just as mobile as he always was, though there is a lot of obvious muscle wastage. However, he's 68 but as physically active as a man half his age...
  4. K

    Waiting for DNA results for dad

    Thanks Nikki. We've told him to take it easy but unfortunately he insists on going on as normal and he was always a very active man. I suppose part of him believes that if he maintains normal behaviour and activities he won't get worse. Thank you again for all your advice. I really appreciate it.
  5. K

    Waiting for DNA results for dad

    Thank you both. I really appreciate you responding to me. I was confused by her bringing up family history of depression and suicide too. I was too confused at the time to ask any meaningful questions though. She must think there is a link as im not sure what other evidence there is to suggest...
  6. K

    Waiting for DNA results for dad

    Hello, I'm new here. My dad has just been diagnosed with MND. He's 68. The doctor told us last week that she is about 50% sure that it's familial MND. We have no history of it that we are aware of but my fathers mother died in her late 50's from an unknown illness. She was very frail and...
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