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  1. M

    Mommychops' Son

    my sweet 44-yr-old son (PALS) died last night in his sleep. i turned him at 2:30 a.m., adjusted his pillows and bipap, he smiled and nodded 'ok'. that was it. it was so sudden. we knew it would happen, but not so quickly. and not so quietly. prayers couldn't keep him alive, but maybe they...
  2. M

    sip and puff (plus)

    has anyone used a 'sip and puff' to use a computer? (not a bipap) has anyone used a quadstick to use with a computer? any help? thank you...
  3. M

    alka seltzer through g-tube

    hi...i haven't found a definitive answer. can i get some alka seltzer into my PALS through his g-tube? if it works so well on phlegm, i'd like to get started asap. tnx...
  4. M

    call switch

    my son is losing his voice. we've been using a baby monitor, but he's too weak to be heard anymore. i saw something here called a 'pad ...' that looked just right, but i don't know what to hook it into. can someone help me? ALSO, i keep seeing ads and not being able to read the complete...
  5. M

    V.alrt alarm button too hard to press

    We've set it up on his wrist, but his fingers are too weak to press the button. Does anyone have experience with this? I don't know if perhaps i got a defective device.
  6. M

    L-serine dosage

    My son is trying to figure out how to take 30 grams of L-serine a day. Can you help us? thank you.
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