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Has anyone heard if the oral version of edaravone is effective? The massive infussion protocol works only on a subset of als would the miniscule dose of oral edaravone even be noticable?

Thanks vincent the search function doesn,t work on my phone so if it isn,t in the stickies then i will just ask besides it helps when i interacted with others here on the forums

Hi I was wondering what role ck levels have with als. My family Doctor pointed out that mine were high (1300). I am still learning about my diagnose so I didn,t ask about this. Sorry if this has been covered i forgot to use search for this(i forget lots of things) Thanks Ron

not gf strong i am suppose to be getting a referal to a rehabilitation dr there but i can,t seem to be able to confirm that yet. I had my emg with dr gibson who did the als diagnose and is refering me to dr Briemberg(the als specailist) for a second opinion both at the Neuromuscular Diseases...

Thats right i have to buy a membership to pm i think and i can,t do that yet. But it is nice to know your nearby I go to a church in langley when i can that is.

Hey thanks it really helps being able to share/talk. At the moment i don,t know what is wearing me out more als or my wifes dementia. I have yet to get help yet but it is on my todo list . Right after my EMG I felt weak for about ten days my fall rate was 5/week. Now I feel a little better but I...

I recently had an EMG and at the end of the test the neurologist told me I had varaint of als she also is sending me to a als specialist whom I am booked to see in 2 months. 4 years ago my left foot went numb then I lost the use of everything below my left knee. I was able to keep working with a...