Watching someone you love go from being an active person to someone that cannot do anything without great effort is very heartbreaking.
I know how you feel. Some days I am okay and others it is very difficult. Life goes on. It's just very different from what I thought it would be.
My son is having difficulty going from wheelchair to car. Looking for a cheap wheelchair accessible
van. We live in Southern California. Does anyone know about transfer board from wheelchair to car. Also
trying to find a bigger apartment for him to live in. Very frustrating!
Have you been able to visit your son? If I remember correctly he was living on the east coast.
I had a bad week last week but for today I am okay. Sometimes I just get a real panicky feeling. Like there is something I should be
doing to make this all better. As a parent I don't want to see...
I am so sorry to hear about your husband. When my son was first diagnosed it felt unreal to me. Like a horrible nightmare. It took some time for
me to process it all. I was also heartbroken for all of us. But your lives are not over. I just try to do it one day at a time. The ALSA helped me...
First of all I am very sorry for your loss. My doctor recently suggested I take anti-depressants. My son was diagnosed end of January of this
year. I was on the fence about taking them. But I gave them a try. I only took them for 2 weeks and got very nauseous and felt real
lethargic. I...
I am so sorry to hear about your son. The ALS foundation of Orange County is a good source of help. I too cried everyday for the first week
and couldn't eat or sleep. I got some sleeping pills from my doctor to help. I also started meditation everyday. Just a few minutes each
morning but it...
This is my first post on this forum. My son, who is 35 years old was diagnosed with ALS
the end of January. It is so new and so overwhelming to all of us. I feel so helpless
sometimes and when I see him my heart breaks. He has slurred speech, lot of muscle
loss. He can walk some with a walker...