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I have hesitated even posting this (yes i read the stickie).. My mom was diagnosed in February - age 58 bulbar onset with FTD.. since her diagnosis i have had the twitches all over every day .. mostly though in my upper arms and calves.. my calves and legs are now tight and sore (no exercise) my...

Helping my mom with a bath tonight my heart I think literally broke :( it shouldn't be this way.. We had so many years of taking care of my grandmother together that this is supposed to be our time !me and my mom...but instead als came along ... I am so angry and so sad but would not give up a...

Mom has always had bad allergies ( seasonal mostly ragweed) she had a lot of trouble breathing last night ( still no bi pap :( uggg but I am thinking allergies and the excess mucus ... She had taken Zyrtec in the past but last spring said it almost felt like she would stop breathing in the night...

I am hopeful but so anxious .. Mom gets her feeding tube monday.. They say she will go home that day ,that its a simple procedure .. Is it that simple ? I worry so much about her breathing issues ( she was having a lot of trouble last night .. And of course we still don't have the bi pap ...will...

a little back story my mom is 58 yrs old .. diagnosed bulbar March 4th. she has gone from 155 lbs in October to barely 108 . We are a part of a brand new ALS clinic here in chattanooga which i am not sure we are getting the best information or care since they are so new there are alot of kinks...

so it isnt enough that my mom has a terminal illness just a mere 4 months after my grandmother passed away. We cant seem to get any help at all and I am feeling more and more that we are not in the right place or looking in the right places for answers... Mom spent the past 14 years caring for...

HI, I am Mandy, I have been looking around for a few weeks. My mom (age 58) was diagnosed officially a on March 4th. I dont think i have ever felt more alone... She has bulbar onset which we initially thought may have been a stroke related to the stress of losing my grandmother (that she cared...