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  • Users: Prohobo
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  1. Prohobo

    Guilt

    I can't help but feeling guilty - massively so. We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious. As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to...
    • Prohobo
    • Thread
    • als assisted living clinical clinical trial diagnosis guilt headache increase insurance medical medicine meds neurologist peg rant test therapy treatments trial venting volunteers
    • Replies: 8
    • Forum: Current caregivers
  2. Prohobo

    A Joy to the World!

    My mother's name is Joy, and she certainly lived up to her name sake. It is with great sadness to share my mother has passed this morning peacefully at 6am (ET) from her battle with ALS (bulbar). My mother was an amazing woman. She became a school teacher and taught at Douglas MacArthur High...
    • Prohobo
    • Thread
    • als bulbar china cry diagnosis early english teacher eye family hospice love sad speech students wanted wheelchair
    • Replies: 11
    • Forum: In memory of
  3. Prohobo

    VACATION question

    As I am new on here and just posted that we found out my mother has ALS (fairly advanced - no longer talking and barely moving) it has certainly changed a lot for me. I have already canceled a business trip this week and cleared my calendar to be with her as we go through this. However - I have...
    • Prohobo
    • Thread
    • als back cell communication confused diagnosis family family member financial frustrated grief insurance life love mad money night planning trip vacation wrong
    • Replies: 13
    • Forum: Current caregivers
  4. Prohobo

    Posts not posting

    I joined yesterday and made three posts. Today every posts said that it needed to be reviewed by the site moderator. However, they still haven't been posted yet. Please help. Thanks.
  5. Prohobo

    New to This

    My mother was diagnosed (officially today) with Bulbar ALS. She can't speak anymore and can barely move (wheelchair). She can still write - but that is degrading quickly. She had fallen a month ago and from the hospital moved into a skilled nursing facility, where she has been ever since. I...
    • Prohobo
    • Thread
    • als bulbar bulbar als cry diagnosed diagnosis family family member health ignore tests wheelchair
    • Replies: 6
    • Forum: Current caregivers
  6. Prohobo

    Bad and Awkward situation.

    I am in an awkward situation and I really don't know what to do. I am the POA for my mother, who at this point can NOT speak and barely moves. In October 2014 my mother's speech slurred and she had a funny gait (walk) - she had previously been dancing and swimming - so this was rather...
    • Prohobo
    • Thread
    • als back brother diagnosed diagnosis family friend health heart hope neurologist physical therapy speech surgery therapy treatment
    • Replies: 22
    • Forum: Newly diagnosed
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