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  1. A

    weight loss

    My husband was recently diagnosed with ALS. He was built like a somewhat overweight linebacker- 6'5 and 360ish lbs. Over the last 18months I noticed that he was losing muscle mass and gaining a bigger belly. He was eating pretty poorly (pizza, junk food) as I was working a lot. But he didn't...
  2. A

    Personal hygiene

    My husband has brought up a delicate problem that has been developing over the last week :oops: He is having trouble cleaning himself after a bowel movement. Not the reaching part but grasping the toilet paper and applying sufficient pressure to clean (I hope this is not TMI for everyone). At...
  3. A

    Muscle biopsy

    My husband's neurologist wants to do a muscle biopsy on his thigh. He is scheduled for bloodwork and a thigh MRI on Monday. We have a "probable" diagnosis of ALS. The doctor even said he is just trying to go to great lengths to make sure it is not something else. The extensive EMG was very...
  4. A

    Elevated Aldolase

    So the neuro called yesterday. He said my husband's Aldolase is elevated a bit. He said he doesn't normally see this in ALS so now wants to do a muscle biopsy to r/o polymyositis. I am a bit frustrated because when he did the initial bloodwork I thought he had looked at all of the potential...
  5. A

    "Probable" ALS diagnosis (husband)

    I posted a few months ago regarding my husband and concerns for ALS ~ https://www.alsforums.com/forum/do-i-have-als-als/28271-concern-my-husband.html We had out 2nd visit with the neurologist at Virginia Mason in Seattle- MRI of head and spine, EMG, results of bloodwork, another physical exam...
    • amysgarden
    • Thread
    • als back clinic diagnosis emg husband immune improvement lambert eaton magnesium mri myasthenia gravis neurologist second opinion shoulder symptoms trip
    • Replies: 10
    • Forum: Newly diagnosed
  6. A

    Concern for my husband

    My husband is a big, tall burly guy. I have noticed over the last year that he seemed to have lost muscle mass and we chalked it up to age (early 50s). Instead of having tree trunk legs and arms, he has skinny guy legs/arms. Still no big deal. He has had some cramping, tremors or...
    • amysgarden
    • Thread
    • age als ankle balance bed bulbar cpap cramping cure early emg falling fasciculations foot friend headache husband mri muscle pain problems slurred speech speech swallowing symptoms tests treatment urgent weakness worried
    • Replies: 35
    • Forum: Could this be ALS?
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