We are one week home on the vent .. We didn't have a option and it's what mom wanted .. But now doesn't trust it and it causes so much anxiety .. Mom is not sleeping .. Dad is not helping ( he has a bad heart and is on disability ) I have interviewed and hired a nighttime caregiver ( I sent her...
update: they had no choice but to do the trache and vent (said it was life or death)...:( she is tolerating it well...we did consult with 2 seperate pulmonologists as well as moms als dr...
she would not do the cough assist at home nor would she wear her trilogy mask (she has had both for...
so mom pulled out her intubation tube last night ... they put her on cpap and now today only on oxygen and the looks great.. the only thing is she still cant cought and get that mucus up.. so pulmonary care wants to meet with us at 4 to discuss a trache... i am terrified
She is 58 bulbar onset .. Peg tube in April still down to 80 lbs :( has copd on top of the pneumonia .. I along with my sister and father care for her ...she has had symptoms since October ....