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  1. M

    Not sure how much more I can take

    They say my dad makes too much money with his disability :(
  2. M

    Not sure how much more I can take

    We are one week home on the vent .. We didn't have a option and it's what mom wanted .. But now doesn't trust it and it causes so much anxiety .. Mom is not sleeping .. Dad is not helping ( he has a bad heart and is on disability ) I have interviewed and hired a nighttime caregiver ( I sent her...
  3. M

    And now mom has pneumonia and is on a vent :(

    update: they had no choice but to do the trache and vent (said it was life or death)...:( she is tolerating it well...we did consult with 2 seperate pulmonologists as well as moms als dr... she would not do the cough assist at home nor would she wear her trilogy mask (she has had both for...
  4. M

    And now mom has pneumonia and is on a vent :(

    so mom pulled out her intubation tube last night ... they put her on cpap and now today only on oxygen and the looks great.. the only thing is she still cant cought and get that mucus up.. so pulmonary care wants to meet with us at 4 to discuss a trache... i am terrified
  5. M

    And now mom has pneumonia and is on a vent :(

    She is 58 bulbar onset .. Peg tube in April still down to 80 lbs :( has copd on top of the pneumonia .. I along with my sister and father care for her ...she has had symptoms since October ....
  6. M

    And now mom has pneumonia and is on a vent :(

    Actually she is Intubated I misspoke
  7. M

    And now mom has pneumonia and is on a vent :(

    I have no idea what to do we came to the er .. Mom has pneumonia .. The had to put her on a vent :( what do we do now
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