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Jalynn, your story is heartbreaking and I'm so sorry your family is going through this. Your father is lucky to have great family like you around him through this impossibly difficult time. Kelly mentioned joining a support group can help. I wanted to second that. The hospital may have some...

Kim and Pat already shared some great tips. I just wanted to add that The TN Chapter of the ALS Association may be able to point you in the direction of hiring local professional caregivers. Your mother's doctor may have suggestions, too. The Family Caregiver Alliance also has a wealth of...

Lisa, it's great you are here and reaching out. Being a caregiver can be overwhelming, even isolating at times, so it's wonderful that you are looking for support in this journey. ALS is filled with many ups and downs as you are aware and your husband is lucky to have you. There are some...

You mentioned you're going to see the doctor again soon, so in the interest of making the most out of your appointment, here's examples of some questions you might consider asking. Getting an accurate diagnosis is key to getting treatment right so make sure you get all the information you can...

Hi harlo - I see you're in FLorida. The ALSA Florida Chapter has a list of ALS Certified Centers of Excellence and Recognized Treatment Centers. Definitely check out their website and consider giving some of the treatment centers and clinics on that list a call.

It's great that you're going for a second opinion. The best thing you can do for your husband and family is be proactive in his care, and making sure you get the right diagnosis is key to then getting him the best treatment. I thought it might be helpful to pass along some resources to help...

So sorry to hear about your sister. A second diagnosis is worth the trouble. The ALS Association has an excellent information sheet available with lots of details about finding a second opinion: Second Opinion FAQs - The ALS Association