Thanks, we are trying to surround her with loved ones and being at home has to be a comfort. Just wish as we all do that I had a crystal ball and a way to stop her suffering and decline. She has had a rapid decline in the last 3-4 weeks, limbs were working (but weak) less than a month ago and...
Hi
My Mother was diagnosed with bulbar onset ALS summer 2012. She is currently almost completely paralyzed (some hand and arm movement), on bipap 24/7, has peg tube, in bed at all times due to sitting up it hurts to breath (with bipap), on Hospice.
She is on anxiety medications and some pain...