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I got the same information from my nutritionist at clinic, that one should only use prepared formulas in peg tubes. But as you, I researched and found only things like Boost and Ensure. Here's a link to a website of a woman who makes organic formulas. Another Social Worker told me she had worked...

I have been taking Riluzole for just two months. I haven't had any nausea, or loss of appetite. I tend to see it as belonging to the experiment that is the medication. I must admit, because of the difference of progression we all feel, that I'm not sure how any doctor can give you solid...

I use them on the mirrors, or glass walls and they work fine, but then again, I don't have the bars, just the hooks for towels. Jayne

Thank you tripete. I'm very lucky to have Dr. Jeremy Shefner as my neurologist. I'm hoping to find out more about this study upon my next visit. But I would most certainly like to see this webinar in a video. Jayne

Scottsdale, AZ now under cloud cover. Wierd!

Hi Cheryl, I'm afraid I have to agree with those saying go. Is there internet on the boat? could you do some skyping while onboard? See what the bros are doing while they see you all enjoying sea air? I would go, especially since you can arrange for the care he needs. Jayne

The comments and advice given on losses, any loss, yours or his are so spot on. I am most joyfully impressed with the amount of comfort and knowledge given by all of you, and count myself lucky to know I'll get the same great care from you all when I need it. Thank you all soooo much for...

Thank you all so much for your great words of support and caution. My right leg is now becoming the weakest one so the balance issues for me are not only front back, but becoming side to side also, so most certainly I'll be adapting to a small wheel chair for outside excursions. I'm not sure...

Hello Everyone. I'm so happy to have found this Forum while googling away this morning. It looks to be full of exactly the right kind of people I need to communicate with. I was diagnosed Oct of 2014 with ALS. It was a lengthy process, rather frustrating as even the neurologist I was working...