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  1. J

    Symptoms persisting progressing.

    I was curious if there was anyone with a slow progression, that took so long to get diagnosed? I'm at about 2 1/2 years of symptoms and they seem to be atypical. My right arm is the worst. But it started with fasics in my left thumb. They were so rapid it looked like a resting tremor. I do not...
  2. J

    Symptoms persisting progressing.

    LizF, Thank you very much for your kind words. I am so sorry to see that you are on here as well.This atypical presentation seems quite odd to me. It is still very presumptuous of me to say, but it seems like a lot of pieces are starting to come together here. I am definitely nervous. But am...
  3. J

    Symptoms persisting progressing.

    Hello everyone and happy holidays, I received a letter in the mail yesterday that I am being sent to the neuromuscular clinic in February. I went to my GP and obtained a copy of my last clinical with a neuro. It stated that I have a positive brisk reflexes on my left leg as well as positive...
  4. J

    Symptoms persisting progressing.

    Thanks very much for the advice. I have been using that for the passed while now. Through logic. I went from waited keys, to unweighted smaller keys, virtual now. I'm still trying every day. But it is getting quite hard
  5. J

    Symptoms persisting progressing.

    I went in and saw my GP today. And they have put in a referral ( in conjunction with the general neuro I saw) to see an ALS specialist. I was asked to leave one of the bands I play in. We Were scheduled to play a 30 minute set a week ago and had to quit 10 minutes in because I kept dropping drum...
  6. J

    Symptoms persisting progressing.

    I agree 100% with you. It's quite a juxtaposition to have your work write your doctor a letter. I hope that this disability leave will spark some sort of hastiness. I've had to bow out of three jobs this year because of my physical inability to do them. Minus the terrible cramping and muscles...
  7. J

    Symptoms persisting progressing.

    I don't mean to make an excuse for living. I live in another country from my grandmother before she passed. I appreciate your advice Tillie, as always. And everyone else's. I live each day as best I can. Always have. But it's not a situation where " my muscles twitch, I think I have ALS."...
  8. J

    Symptoms persisting progressing.

    Thank you very much. I am very sorry to see that you have had to come here. Nothing but strength and positive thoughts for you and your family as well! This disease is so awful. I am so so sorry for you. For everyone on here.. this has been about 2 years with no answers. First I was told...
  9. J

    Symptoms persisting progressing.

    Hello all, Since my last post I was sent to PT. the fasiculations and cramps have been getting worse and my hand dexterity is declining to where I was asked to take a leave of abscence from work. It started with dropping multiple bottles ( bartender) and then dropping glassware and cutting my...
  10. J

    Hello, Firstly my name is Joe. And very sorry for your early diagnosis. I saw you were diagnosed...

    Hello, Firstly my name is Joe. And very sorry for your early diagnosis. I saw you were diagnosed at 29. I started experiencing symptoms at 29 and am now being further investigated at 32 with a possible MND. What were your first symptoms like?
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