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I'll mention that info to the respiratory therapist and ask about the other mask too. Thank you

Diane, Yes I am very thankful for your site. It has helped us tremendously! Keep fighting a cure is coming! Thank you for fighting the fight and sharing your life with us In Hopes to help others!

Laurie, I think it's kind of both. He did just have his setting changed a couple of weeks ago to allow a higher volume. That's what the respiratory therapist said, he was hitting a ceiling and needed more volume. I'm still learning about the trilogy.... His says haven't been too bad, but he's...

My PAL has bulbar onset ALS. He is facing deciding on trach. He has been on NIV for about 8 months and his diaphragm has become weaker, pulmonary Doctor has recommended trach. My PAL wants to make an informed decision. Yes a lot of information on web, but he wants current, straight from other...

Tube feeding help.... My husband has an ongoing nausea issue, when doing feeding, if I bolus he tolerates about 500ml pushed in about 10 minutes but only twice a day. He stays nauseated all day. Taking 2 different meds for nausea already. Not enough nutrition. We've tried slower over night with...

What did he do for his bph?

Re: Best Tablet for PALS Thank you all for your thoughts and experiences. We've ordered an inexpensive tablet. Figured we'd try different apps and see how he feels and does. This way if he has issues with the easy ones we will know not to go overboard mad spend money on special things he may...

I have read thru the past posts. Just wanted newer information of available . Thanks for the heads up! At this point anything is worth a try!

Chumpy still here! Grumpy too! Lol my new nickname for my PAL.... I LOVE HIM But he is a cranky fella! So to update, progression still super fast and scary. FVC is at 40%, down to 114lbs from original weight of 200lbs 5'11".... Doctor wants him to do tracheotomy, he is using mask with the...

Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine! Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting...