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  1. P

    In Limbo and feeling scared

    No I didn't ask a lot as tbh I was in shock it's not down to Fybromyagia and was expecting him to sign me off. Just got home and headed off to dr google! I know he was concerned about the breathlessness in particular which lead me down this path. I know at one point he thought it was MG due to...
  2. P

    In Limbo and feeling scared

    Forgot to mention my next course of tests are: More bloods, A muscle biopsy An MRI of my limbs I've been referred to a respiratory clinic also to help with the breathing difficulties. Really frustrated would love an indication of what it is but my neurologist is not letting on just stating a...
  3. P

    In Limbo and feeling scared

    I've had symptoms for about a year I'm not going to list them but just say that at present my main symptoms are breathlessness, fatigue, fascinations/spasms and nerve/joint pain which do seem to be getting worse and have affected my mobility. We went through thinking it was physiological until...
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