Ok went to the ALS expert he told me my results on my muscle biopsy back in November are absolutely nothing. He reviewed all of my things I have done and gave me a great exam and told me no way I have ALS. Thinks I have fibromyalgia with all my muscle pain. I am done here now, won't be posting...
Thanks for the encouragement melbellred! I am sure you are right its just controlling the stupid anxiety. No my legs really don't feel weak. The muscles hurt their a lot which is actually a good thing as a symptom. They get tired easily but I wouldnt say weak. I will keep you updated and I...
Ok just an update. My neuro was trying to get me into see a neuromuscular neurologist which sounds logical given my symptoms and was wanting me to go to UT-Southwest here in dallas but they couldnt get me in until May. So my rheumatologist who thinks I have fibromyalgia wanted me to go see...
Ok the neuro finally called me back at almost 4:30 today. Told me he was on call all weekend and apologized. I really believe he cares and he is very competent. He said he is confident I don't have ALS, he wouldn't rule it out, but I think he is one of those guys that understands the one in a...
I agree Atsugi is so helpful! I hope you find the answers you need quickly melbellred. I think through further research on my muscle biopsy it just lends to further confusion on my end. The EMG should have found the denervation with reinnervation. It didn't so I am wondering if I could...
Oh I most certainly believe in God BUT I go to many doctors. That sort of false doctrine is horrible and I am so very sorry that happened to your family. The Bible is filled with hope but its also filled with suffering and to tell you that is so NOT what true faith is. Once again I am so sorry...
Thank you Atsugi! I know you guys deal with so many paranoid people and I am hoping I am another one. I really appreciate you taking the time to read that complicated essay! I had total peace and then boom this pulled me out of it today. I know better, as a matter of fact I was a pastor for a...
Ok yes I know that is the longest title possible! I will give an ever brief summary because I know your time is valuable. I have psoritatic arthritis, had it for 8 years, no meds for it, in July started having calf pain. Then quad pain then tricep pain. I say pain its more like i have done...
atrophy
back
biopsy
cramping
denervation
diagnosis
early
emg
meds
mistake
mri
muscle
muscle biopsy
muscles
pain
symptoms
test
wanted
weakness
worried
worried about als