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We miss our mom so much and coming to this site makes it feel some better. We lost her October 19,2016. Jennie Collins. I come here daily to seek siimalarities and answers and comfort. Thank you.

You do not present with ALS. I know. I saw it first hand with my MIL.

My Mother in law who passed in October spent about a week or maybe two "locked in". Thankfully the good Lord took her quickly and quietly. Kate 58

Hello, I first posted back in November when my Mother in Law was diagnosed with PBP. It is with great sorrow I report that she passed away today. I didn't post much on here. I'm not that computer savy and kind of old school but I wanted to let you all know I did read this site daily. And I...

Thank You Tillie and God Bless you! It's hard because she has a husband and we are just out in the wings on this whole thing. Learning and Living. God will see us through!

My dear Mother In Law, grandmother,great grandmother,wife and mother to all of us who love her was diagnosed with PBP the day before Thanksgiving. Our family is reeling with pain and disbelief. Finding this place was a God send! My Mother In Law is 80 biologicly but works like a 60 year old...