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  1. cidkruser

    MND but not ALS?

    Thank you so much for your response. You referred to "your reading" and I would love to know your sources. Every time I do a Google search for "Distal Predominant Motor-Neuronopathy" it brings me to ALS sites. DPMN apparently has no genetic link in my case. I am the youngest of 5 children, none...
  2. cidkruser

    MND but not ALS?

    I was diagnosed with a form of MND (Distal Predominant Motor-Neuronopathy) at Mayo Clinic in June, 2002. I am now 56. I was told my illness was a "cousin" to ALS. It has slowly progressed to the point of me losing 75% of my hand function within the last year. I'm totally reliant on a rollator...
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