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    New and unsure of what to do next?

    Hi Megan, I am will be 57 this year. I was diagnosed with ALS 5 months ago. I have the gene in my family. I am a Christian and I thank God for every day I wake up. My ALS is very progressive. Mine starting with my speech and swallowing then it affected my walking. I have a breathing machine, a...
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    ALS symptoms

    Hi Gooseberry, I have a portable ventilator machine. I have had the nurses out several times but they don't understand that I don't need 4 rescue breaths in a row.
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    ALS symptoms

    Hi Dalvin, I am using a portable ventilator machine.
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    ALS symptoms

    Hi Tillie, I sleep on my right side usually but I have to switch to different sides due to pain. I go to the Sacramento ALS clinic where I get checked by many different doctors. I have a portable ventilator machine.
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    ALS symptoms

    Hi, I reposition myself but I struggle. I do wake up with headaches also. I have a ventilator but when I have used it, it gives me to many rescue breaths so I don't like using it, I feel like I am suffocating. I have hot flashes too but this is different.
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    ALS symptoms

    I was diagnosed with ALS on August 16. 2014. I have been having night sweats and I wake up yawning all day. I know that I change position when I sleep due to the pain I am feeling. Is anyone else experiencing these things?
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