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Hi all and I just want to thank everyone for their help over the 7 months that Ron was failing. Just to let you all know that Ron passed away May 26th just after noon. He was in a coma for about two days and just passed away with no pain, no fear --- just like they say. I knew it was coming by...

Hi to all... It's been awhile since I've been back on this forum. Ron has deteriorated so very very fast and I don't think he has much time left - maybe a month or so - his neurologist agrees :cry: We have a HUGE problem now. Ron has no movement in his hands or legs (or head). He wears the...

Hey all, haven't been on in awhile - things are very hairy here, these days. Trying my best for my sweet hubby but being called a b**ch by his daughter in front of him and our respite care-giver doesn't help. Oh, my poor hubby now has both shoulders in pain. He cannot put his arms over his...

Ron barks a lot at us but not at our palliative care person and she sees this. She talked to me and Ron's daughter about this yesterday and was wondering why he's so terse with us and yet when she is with him alone, she asks him if he's ok, needs turning, needs coffee, water etc. - Ron just...

A "jewel" of a poop - warning .. graphic content. Do not read if you are underage ;-) Just wondering what kind of adult diapers men find the most comfortable. Poor Ron never made it to the commode quite entirely, and he's having bowel mishaps where it's very urgent and he doesn't feel it coming...

Oh, man....did you ever feel so unappreciated? I feel so very very hurt right now. There's nothing I won't do for Ron...NOTHING...I would give my very life to protect him. We had our friends over and Ron's sister and husband over. Ron had to go to the commode and he was having painful cramps...

I just had an AHA moment ! I was going to make hubby a robe that's open at back so it's easier for his arms (put it on from the front) but hubby hates something open in the back - he likes to sit on the back of a robe since he goes commando (sorry, too much information, right? LOL!) So I got...

Heheheheheh - thought that would get your attention :grin: Just wanted to gather you all together for a virtual group hug is all! Happy to be a part of this family ... have a wonderful day to all my CALS and PALS Hugs from Heather xoxoxo

Did you guys see this gadget? Pretty good idea, I think, for anyone with a disability (in this case, the man who invented it has ALS) who uses a public washroom with the door swinging open sometimes. Let's Roll Bathroom Buddy Do a search on YouTube and you'll see it in 'operation'

:cry: It took 2 hours this morning to get hubby into wheelchair, he's getting weak and so am I. We have had our respite service Mon Wed and Fri and help the rest of the week. I injured my hip and couldn't walk. Got an injection of cortisone after doctor told me I had bursitis of the hip. Better...