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Thanks everyone. Insanely tough decision. The day will be feb 25th. Strange. It's like scheduling an "appointment" of some sort. I think it still hasn't hit me that this is really happening. Feel horrible for my 3 daughters. Just isn't fair. But if anyone understands, you all do. Thanks...

We have decided to take her off the vent. She is unable to communicate and the pressure wound is not healing. We have hospice coming in about 2 weeks.

I remember seeing a post a while back that listed things I will need to do after my wife is gone....changing name on bank accounts, etc. I can't seem to find it now. Any help?

My wife tried pretty much everything to fight this disease. One of her ideas was to see a chiropractor (who sold us lots of expensive supplements!). But because of the fear of her falling, I used to leave work before her appointment, and sit in the parking lot of the chiropractor's office...

I should add the bipap will give him an immediate sense of comfort. It won't help the choking but will resolve the air hunger right away.

I was in exactly the same situation you are. My wife couldn't stand candles, lotions, perfume etc. Also needed a fan on 24/7. Get the bipap TODAY. Don't let anyone tell you it will be a few days. You don't want to do the 911 call. I watched my wife go into respiratory arrest at 3 in the...

Thank you.

Hi Megan, I can relate to everything you are saying. My wife was diagnosed in Dec 2011 at 41. We have 3 daughters. She was in denial most of the time, I think she convinced herself that if she kept saying it wasn't true, then maybe it wouldn't be true. We tried all sorts of...

I know exactly how you feel. My wife and mother of our 3 daughters is also nearing the end. I have all the same emotions you do. So f'ing angry and sad. My 12 year old told me a couple of days ago that she has hope for mom because she learned about stem cells in science class and how they...

I'm so sorry for your situation. Everytime I read one of these stories I want to drop everything and go help. Obviously not possible with my own responsibilities here. You have had a tough road but I'm afraid a tougher road may lie ahead. My advice would be to make sure you know his wishes...