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    My husband died on Aug. 16. He never was able to make the Tobii we got work for him. But thank...

    My husband died on Aug. 16. He never was able to make the Tobii we got work for him. But thank you for thinking of me.
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    My love is fading

    So very sorry. He is lucky to have you present with him. Wishing you peace at the end of the road, and strength to continue the journey.
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    husband just diagonosed and terrified

    I am so sorry you have to be here. I remember those first, terrifying weeks very well. You're getting great advice. Other resources include the ALS Association if you have one in your area. Also find out if there are ALS clinic where you live, or where the closest one is. The people there can...
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    FREE men's pants / adaptive

    Hello all: I have several pairs of adaptive men's pants/shorts that are in very good shape — a couple pair have never been worn. I am happy to ship within North American to someone who can use them. If you want them, or know of someone who could use them, please send me a private message...
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    My Grumpy has gained his wings

    How lucky you were to be with him as he died, holding his hand. I hope that brings you peace and comfort. I lost my husband on on Aug. 16 (his birthday) and he died in my arms. I wish for you strength as you embark on your journey without his physical presence, but he is with you, and will live...
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    Jamie Showkeir

    For those who have not heard, I'm sad to tell you that my husband, Jamie, died on the morning of Aug. 16 — his 63rd birthday and the 10th anniversary of the day we met. A complete cycle. The details can be found on our CaringBridge site: Jamie | CaringBridge He got his wish to die at home. He...
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    CALS Roll call

    Atsugi, Thank You So Much. I think that is exactly what I needed to hear right now.
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    CALS Roll call

    I am so exhausted and spent and emotionally numb. My husband has been in hospice since late April, takes morphine and Ativan among other drugs. Paralyzed from the neck down but still talks and can eat and swallow. Uses a biPAP but no peg. He dozes a lot during the day and has been battling...
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    Technology: Tobii eye-gaze

    Oh, the joys of being in a country that is progressive and enjoys democratic socialism. In the U.S. our crazy medical system makes it very hard to get what you need. Our Medicare system will pay for a larger display, but only for communication. It turns off the Internet access, which is...
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    Technology: Tobii eye-gaze

    Hi Doug: We are using a loaner Tobii (the tablet + software) from AZTAP, working with a woman named Mellowdee. We didn't meet a Clayton. That office is actually crawling distance from where we live. But Jamie hasn't been able to make the eye-gaze work. Mellowdee is coming over on Thursday to...
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