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Does anyone experience a burning pain during a bowel movement? There is no blood, no hemorrhoids that I know of. Just trying to determine if this is part of MND or something else. Thanks, Deb

Greeting! Are any of you receiving Medicaid also receiving home health aide assistance? How many hour per day is Medicaid providing? How do they determine how many hours do they provide?s Thanks, Deba

Greetings friends, Asking for your input for a increasing concerning problem. I can't stay awake. I fall asleep while getting my nails clipped, taking a tube feeding, in the middle of writing an email, in the middle of doing exercises. It doesn't matter if I just woke up, I could go right...

I have clinic soon and I know the issue of a baclofen pump is going to come up again. I believe they offer the pump to all with PLS, but I believe it is more helpful to some than others. So I’m doing my research to find the ideal model for a successful pump installation. Will you take a...

I have clinic soon and I know the issue of a baclofen pump is going to come up again. I believe they offer the pump to all with PLS, but I believe it is more helpful to some than others. So I’m doing my research to find the ideal model for a successful pump installation. Will you take a...

Anyone have any information that would suggest edaravone is effective for PLS? Deb

Hello all once again, I’m like the college student who never writes unless they need money. Well, I don’t need money, I need help. My ability to eat regular food has declined rapidly. I’m now on strictly pureed foods and smoothies. Water with ThickIt. Everything out of a straw. Pureed...

Greetings all, Swallowing difficulties, and a swallow test has been ordered. What to expect? They aren't going to let me choke, are they? I'm scared they are going to give me something I know I can't handle. Food getting stuck in my esophagus. I need to wash down about every bite with...

I hope you can help me understand what's happening to me. I can't even explain it very well. I get these episodes where it seems like I'm swallowing air and liquid at the same time. There is a period of about 15 seconds where I can't breathe and I make this really weird sound when I struggle...

Has anyone had a noticeable improvement in speech with using a bipap? Has your voice volume improved, or are you less tired out talking, or? Thanks, Deb