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Hi Folks, this may seem like a silly question since I'm tech challenged, but HOW DO I SET UP THIS PAGE AS MY DEFAULT PAGE? I had it set up before, but I did a software update on my Android tablet and lost a bunch of shortcuts and apps. Now I'm struggling to set this PLS page as my opening...

Hey Bill! Most definitely the same club. My balance is zero, zilch, notta...so I'm giving up using a walker (while my PWC is charging) for night time bathroom runs. I'm still able to stand and transfer but gotta be holding on to something solid for balance. Fiona and Bill, are your voices...

Lauren (love the name Lauren), now you have me wanting the pump. I can't say I have any adverse side effects from oral Baclofen. I think I'll see about a getting a trial at my next Clinic visit in Oct, but it still seems pretty invasive though (to me). Thanks for making us aware there are...

Bill, I believe I am one of your 8 acquaintances with bulbar onset PLS, aren't I? Started 8 years ago with occasional slurred speech, people thought I'd been drinking or had a stroke. Voice got very raspy within 3-4 years. ENT found nothing. 4-5 years ago started funny limp, falling over own...

Lauren, glad the pump is working out for you! I've been thinking about it and I know it would do me good, but the pictures Dr. Google shows freak me out totally. Is it noticeable? Is it uncomfortable? Does it hurt? Also, I see no easy way to decipher what spasticity feels like to different...

Thanks for all the useful replies regarding our similar journeys. Glad not to feel alone!

Fiona, sorry for kinda hijacking your post! But it appears yourself, Billbell52, Old Dog and I are all on the same (bumpy) ride. Although we are unfortunate, it seems we all (at least) share hope our PLS doesn't morf into "the Big A." A rare breed indeed. Laurie is brutally honest, per...

Uhmmmm...OK! I'm going to ask for an EMG then, right?

Well, I sure hope you guys are right. My symptoms are getting worse in my eyes. I've lost my ability to use a walker and my voice is totally toast now. However, I had another swallow test and aced it! I had a bad one 3 years ago. I think that had something to do with the Vitalstim my ST used on...

Hey Fiona...my neuros don't seem to think I need an EMG (haven't had one in 2 years). After reading your post, I think I will insist on one. At my last ALS Clinic visit in early April, they said they'd like to see me every 6 months rather than every 3. What do you make of that? TB