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Hello everyone, I have not been here on the forum for quite some time. It may have even been a year or so. I am progressing down the ALS black hole. So, like many others, I am looking for alternatives to deal with this crap. I looked at some of the posts on the forum about RCH4. Unfortunately...

I've been doing some reading about the above-mentioned technology. I am wondering if anyone on the forum has tried it for themselves and if any benefit has been found. Thanks, Michael

I like the new button.

Kelli Boreson posted a few times here on the forum about her husband Michael and his diagnosis of ALS. I don't know if anybody here has been following what's been going on with them so I thought I'd mention it. Michael has been in a stem cell trial at the Mayo Clinic. The results show real...

Hello forum peeps, I haven't been around much lately and just thought I'd stop by and say “howdy.” Hope everybody had the best Thanksgiving possible. Here's to the holidays. :) Michael

Halloween was fun. My hands aren't much more than claws these days, but my feet can still boogie (for the moment).

If I understand correctly spasticity is a part of the upper motor neuron aspect of this disease. How is that experienced? Sometimes when I grasp things, or try to hold on to something really hard I get cramps in my fingers. Is that the spasticity? Are there other things that go along with that...

Last night Andrea and I attended the Augie’s Quest Tradition of Hope Gala at the Beverly Hilton Hotel. The food was great, the entertainment was spectacular, and most important we met many wonderful people who are very dedicated to finding a cure for ALS. Last night over a million dollars was...

We had a great improv show last night. I have no idea how long I'll be able to perform, but it was great to hear the laughs. And the other players in Party House Comedy have been very supportive of my situation.

I'm always on the lookout for ways to make things easier (and more fun). I recently got an Amazon Echo. Now from anywhere within speaking distance I can get news, music, weather and ask questions, some of which the Echo knows the answers. Last night we installed Philips hue lux bulbs in some...