Search results for query: *

  • Users: Rasl30
  • Content: Threads
  • Order by date
  1. R

    Relieved, but not sure if I believe.

    We visited the neurologist today (follow up from the abnormal EMG). Neurologist believes this is *NOT* ALS. (omg, I am so relieved!). He thinks that the gait/ balance issues are a result of damage to her spine b/c of compression & scar tissue. He said if there was damage in the cervical spine...
  2. R

    Pick's Disease?

    So I just learned tonight that my great-aunt had Pick's disease. Does anyone know anything about this (I guess it is a type of FTD?) and relation to ALS? I imagine the association is FTD with ALS, but I just wanted to scout out any info you might have as we see the neurologist tomorrow morning...
  3. R

    a sensitive question.

    My brother may be near the end of his ALS journey. My question pertains to those who've had their loved ones elect to discontinue ventilation. Does anyone here have any experience with that? If so, please message me. Thank you!
  4. R

    Waving a sad hello

    It is only in the past 4 weeks that life has changed so incredibly much.... before it was me struggling to manage the care of my household, husband, 6 & 2 year old children, managing my career (I am a scientist) and managing care of my brother (6 years into ALS diagnosis) while also managing the...
  5. R

    FALS and FTD, anyone else?

    Just wondering if anyone else on here has more than one afflicted family member with ALS & FTD? My mother's (68) neuropsych testing yesterday yielded some interesting results (all confounded with damage from "mini-stroke") and so much of it fits FTD to the T. She had a abnormal EMG in October...
  6. R

    FALS, unexpected

    My brother was diagnosed at the age of 44 (2008).... due to headache and drop foot (w/ associated falls). It took a good 2 years for the diagnosis to come, and when it did, it was PLS, four years later with ALS. I've helped him through a lot as my mother's health failed starting in 2011. He...
Back
Top