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I think I believe.... Her MRI came back with severe issues in her L4/L5 (on top of her C3-C7 cervical spinal fusions showing some post-op changes). And now I know why there was so much confusion! Reading more about it all I came across: "Differential Diagnosis To arrive at an accurate...

I hope it is true too! Yes, this neurologist runs the MND clinic at her hospital. I wonder if we should get a second opinion, but we will see what the MRI says today.

We visited the neurologist today (follow up from the abnormal EMG). Neurologist believes this is *NOT* ALS. (omg, I am so relieved!). He thinks that the gait/ balance issues are a result of damage to her spine b/c of compression & scar tissue. He said if there was damage in the cervical spine...

It seems as though there is a particular pathology associated with the brain tissue though... and this is what distinguished it from Alzheimers. I guess I am curious if anyone on here has had other family members diagnosed as Pick's disease.

So I just learned tonight that my great-aunt had Pick's disease. Does anyone know anything about this (I guess it is a type of FTD?) and relation to ALS? I imagine the association is FTD with ALS, but I just wanted to scout out any info you might have as we see the neurologist tomorrow morning...

Travelbugg-- I really hope it is C9 for the pentetrance alone! It does make life a guessing game though. And worry, oh the worry. I want to concentrate on the here and now & what I can do. I still worry though ;-) Update: I got the official transcript from the neuro psych testing. It was...

My brother may be near the end of his ALS journey. My question pertains to those who've had their loved ones elect to discontinue ventilation. Does anyone here have any experience with that? If so, please message me. Thank you!

Some doctors make me so mad! Ug! He had no reason to treat you that way! Are you on any probiotics at all to help replenish your normal flora? Lots of hugs!

(((HUGS!))) So many words. Know we are with you in this time. (((HUGS!)))

Pathophysiological significance of fasciculations in the early diag... - PubMed - NCBI Not that this is a great article, but it does give info.