Search results for query: *

  1. T

    Would you please send photos of your van? Am I allowed to email you or vice versa? In need of a...

    Would you please send photos of your van? Am I allowed to email you or vice versa? In need of a front wheel drive van that a permeability f300 will work in a passenger position.
  2. T

    Nuedexta

    It seems to be available through my Part D suppement as a tier 4 for about $3700 a year. YIKES! I have a request in to my Neuro to see what they have to say. Mine is bubar onset and I have a feeding tube.
  3. T

    New PEG Question

    It doesn't seem to matter how much I flush with, I always have some formula work its way into the tube before the next feeding. If I use too much water, look out GERD! LOL I had this G tube placed the end of April. My first one was placed in March, and had a clamp, so I didn't have that issue.
  4. T

    Service Dog

    Hi to All. Has anyone had any experience with a service dog for ALS? I have had numerous folks ask me if I had considered it. I am not sure what capacity a service dog would have, or what, if anything, they could assist me with. Opinions, or input is greatly appreciated. I am falling a lot...
  5. T

    All terrain rollator

    Looking for an all terrain rollator. Any ideas on what ones really work? Anyone have one for sale? I am an average size woman. Not ready to give up walking in the woods yet if I don't have to.
  6. T

    Clamp for PEG

    Well, maybe I am doing something wrong. Could it be because it is a new site and tube? Yes, my tube is about 5 inches long. Yes, the second I remove the cap to flush, or do a feeding, my stomach contents flow steadily out, irregardless of the level of the tube port in relation to my site. Why is...
  7. T

    Clamp for PEG

    I am new to my PEG and fell at 4wks in, landed on my tummy and displaced my PEG. New tube yesterday and it doesn't have a clamp. I have lost a lot of my fine motor skills in my hands, and am having trouble trying to kink tube and refill syringe with one hand and attach syringe with one hand. Any...
  8. T

    I just wanted to say hi when I saw you were from Owensville. My husband and all his family are...

    I just wanted to say hi when I saw you were from Owensville. My husband and all his family are from Owensville. We still have family and friends in the area. I too, go to Indy for ALS clinic. Don't know you, but wishing you many good days ahead.
  9. T

    Quickly losing the ability to speak

    RE: Derek. I would be interested in knowing more about your program. How are you going to test and then market it? Availability? I have not inquired yet as to insurance coverage for TTS, or AAC, devices. I currently have a small kindle, and a small android. They are not easy to type on due to...
  10. T

    Input on current AAC Devices

    Natural speech, as in a donor voice? My speech is very difficult to understand by almost anyone, so I can't imagine matching up a word from my voice. I am anxious to check Alpha Topics out though. I have been using my Xcel with speech, and have had excellent luck. It does require more typing...
Back
Top