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  1. V

    Drop foot query

    Dear All As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result. The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...
  2. V

    For those that are worried - please read

    Hi everyone My Dad passed away in August 2014 from MND/ALS - 2 days prior to my wedding. Since then, aside from the sadness and grief of missing my beloved father, I have TOTALLY consumed by fear that I was experiencing ALS symptoms - weakness, twitching, buzzing, slurring muscle stiffness...
  3. V

    Question re soreness/stifness

    Dear All This is my third post here. As you might recall, I lost my Dad to ALS last year (he passed away 2 days before my wedding). I remain sincerely in awe of the people who live bravely with ALS and especially those who spend their precious time contributing to this forum. Since my Dad's...
  4. V

    BFS Forum - Help registering

    Sorry to use this Forum to talk about another Forum, but I know there are members who are on both. I am really keen on joining the aboutbfs dot com forum, but it seems that nobody (the main administrator?) is accepting/authorising new members. I have had lots of "symptoms"/worry and am now...
  5. V

    Still worried, confused and grieving...

    Dear All I posted a thread here as "Worried, confused and grieving" back in October 2014, having lost my Dad to ALS aged 61 and subsequently suffering symptoms: Pins and needles - left arm [sensory, can cope with] Muscle twitching - left side, constantly (I mean non-stop) on chest muscle...
  6. V

    Worried, confused and grieving.

    Dear MND connect My Dad passed away in August at 61 from MND, two days before my wedding - he had the condition for around 8 years. I am 32 years old. Whilst still in the throes of grief, I am spending a lot of time in deep anxiety that I am going to inherit this condition and also...
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