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Sincere thanks to you and all other members that make this forum what it is. The support you have given me, and the support you give others is phenomenal. I will take heed of your comment that I no longer need to be here and will duly stay away and move on with things, which include raising...

Dear Nikki/All I had an EMG today and I have "fibs+ No fasiculations. Mild excess of polyphasic units of normal or increased duration. Some rather large units recruiting early to mildly reduced interference pattern to 4mV". He asked if I crossed my legs a lot and I said yes. He told me to...

Thank you kindly for your replies. What worries me the most is not being able to stand or walk on the right heel, and I recall when I had neurology tests back in 2015, walking on heels was something specific that the neurologist looked at, as I understood it to be a presenting symptom. Back...

Dear All As some of you know, I lost my Dad to ALS four years ago in August 2014 and have struggled with both grief and health anxiety as a result. The health anxiety was terrible after my Dad passed, and it manifested itself in lots of "twitching" which was diagnosed as BFS from...

Hi Rounder. If you want to email me re my experience losing my Dad to ALS, then am at [email protected]. Best wishes

Hi Rounder, just read your first post and it's basically exactly the same as how my "symptoms" came on - and I don't have ALS. I have burning, twitching, random weakness, buzzing, tingling, bubbling etc - but have been told by 3 different neuros and 2 EMGs that I don't have ALS. I can only...

Thanks Rounder78, when I was in deep, dark anxiety territory (with real "symptoms"), reading posts like the one I wrote above did not make me feel much better, so am pleased it helps, even slightly. The people who have been kind to me on this forum (e.g. Mike, Nikki etc.) - I've felt a strange...

Thanks Mike, and thanks for your support on this forum when I reached out last year when in deep, dark anxiety territory.

Hi everyone My Dad passed away in August 2014 from MND/ALS - 2 days prior to my wedding. Since then, aside from the sadness and grief of missing my beloved father, I have TOTALLY consumed by fear that I was experiencing ALS symptoms - weakness, twitching, buzzing, slurring muscle stiffness...

Thanks Nikki, sending you my sincere best wishes and thank you for making the effort to respond to me and to all the other posts on this forum, it's invaluable if you don't mind me saying.