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  1. P

    How are others faring with respirator care?

    After six years of PALS' ventilator care, my energy is flagging. My PALS will be 79 in November. He had respirator onset diagnosed in July 2013 and required a ventilator to continue in this life 10 weeks later. During that time he has lost the used of his limbs almost completely, rejected eye...
  2. P

    support for children and grandchildren of PALS

    I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our...
    • pinky
    • Thread
    • cals camp children family feeding grandchildren of pals heart ice onset pals respiratory respiratory onset support tube feeding ventilator
    • Replies: 4
    • Forum: Off topic everything
  3. P

    Respiratory Onset ALS

    As a CAL, I recently joined the forum. I am wondering if there are any folks out there with respiratory onset ALS? If so, would they like to establish a discussion? It seems to me that there are quite a few different considerations with this form of the disease, as the breath goes first...
    • pinky
    • Thread
    • als als? breathing cramps diagnosis diaphragm muscles neurologist onset problems respiratory respiratory onset swallowing symptoms voice weight loss
    • Replies: 7
    • Forum: General discussion about ALS/MND
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