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My darling BJ managed to tip his electric wheel chair and himself over in the garden and land under a fruit tree, seeing him lying on the ground and not moving was a heart stopping moment, fortunately we had friends with us who were able to lift the wheel chair and help me move BJ out from...

Has anyone else heard or tried low dose naltrexone , the dose is only 3 mg at bedtime, BJ has started to take it, a fellow here in Aus has PLS and has been taking it for 12 years now with no further deterioration. Luv Gem

this week a very funny English comedian died with ALS, apparently he was diagnosed March 2015 and passed away this week. Any one else heard this... Or is it just rumour. Rest in peace Ronnie

BJ has started to have some numb and slightly tingly feeling in his lip and side of tongue, he says its a bit like the anaesthetic wearing off after a filling, could this be bulbar starting or something else?

My BJ has laughter as his main emotional liability and we find many non funny things to laugh at. On Saturday out of the blue he asked me would I like some fireworks tonight, well you can guess where my mind went, with a twinkle in my eye I said yes please that would be nice, he was actually...

Do any of our men with ALS have sore breasts, my BJ has had sore breast tissues and nipples for months now, is this another joy of this disease or some thing else. Love Gem

Well my darling BJ has started to use his electric wheelchair, I have put some bricks under his office desk so his chair fits underneath, he is finding it easier to get out of from a sitting position in comparison to his walker. I'm glad he is starting to use it as I feel he is safer in it. I'm...

I have learnt another new skill today, drilling into wall tiles in our new bathroom. I managed to put up two towel rails, toilet roll holder, glass shower screen with a hinge, and replace the toilet seat with a riser with arm rests. Tomorrow I will attempt to put up two corner glass shelves in...

We picked up our new car yesterday, a Chrysler grand voyager that has side entry and up front passenger wheel chair access. Now we need to drive fro Bathurst which is in New South Wales in Australia to Bridgetown in Western Australia a drive of 4462 kms. We left Bathurst at about 8.30 am and...

Well after negotiating with car dealer for 2 weeks and paying for a roadworthy certificate, putting in a offer on the car, the owners want us to pay for the repairs on their car which come to nearly $2400 dollars, and only took a $1000 off their asking, we have decided we don't want their car...