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  1. 3

    bipap & feeding tube advice for ALS-FTD

    Hi all! It's been awhile since I've posted. My husband was diagnosed with ALS-FTD in October 2014. He is definitely weaker in body and mind, week by week! He presented bulbar ALS and personality changes FTD, before a thousand other symptoms kicked in. He just started using a walker when we go...
  2. 3

    Advice please

    Hello ALS-FTD Caregivers: This seems to be the only thread for us caregivers for ALS-FTD. Somehow my favorite one is now closed. anyhow, my husband is going to have serious dental surgery at the end of this week. Any advice to any of your loved ones with ALS-FTD going through dental surgery? The...
  3. 3

    overwhelmed

    My husband was just diagnosed with ALS-FTD and it is so scary and overwhelming and just oh so sad. What do you think about seeking a second opinion? Anyone else out there working as a health care provider seeing my own patients and now caregiving and advocating for husband? It is all so...
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