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Thanks to you all for your posts. I appreciate your thoughts, suggestions, and kind remarks. I am sorry to report that Patty passed away October 21. My other sister and I were with her. It was very peaceful, no struggle to breathe... just took her last breath and that was it. She was on a...

Thank you all for your responses. It is somewhat comforting to know that others understand where you're coming from. Just a quick update. Patty continues to weaken and is unable to swallow water; however, she can handle very small amounts of crushed ice. Her speech has deteriorated a lot. If...

Hello all - my sister was diagnosed with progressive bulbar palsy ALS on 7/2/14. She had symptoms for a long time and was given the run around by many doctors. One doctor two years ago gave her a referral to a shrink and said "go be well." This was after she tried to convince him that her...