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  • Users: jfaidley
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  1. J

    Compression boots, Grandma's "infinity scarf," and microwaveable slippers

    Several things we've found helpful, thought I'd post here: 1) "Compression boots" or "sequential leg massager" (Search that term on Amazon and you'll see what I mean). Friends bought these for a Christmas gift, and they've been very helpful. We had seen them and discussed them before -- got a...
  2. J

    Biphasic Cuirass Ventiliation by Hayek Medical -- anyone have experience with this?

    I wanted to check this out, as my husband uses the Trilogy 24/7 and experiences many discomforts due to the pressurized air being forced into his nose or mouth. Makes him congested and sneezy, which is an issue because he can't clear secretions easily. It's way worse when the humidifier is not...
  3. J

    Patient lift for a small apartment

    Can anyone recommend a Hoyer-type lift, able to be operated by a single person and to lift someone from the floor if necessary, that is made for small spaces? We have a very small apartment in NYC... I have found some options online, but thought others might have firsthand experience. I...
  4. J

    Humidification and non-invasive pressure support

    Hello! Would be grateful for any input. My husband is having a real struggle with respiratory stuff -- especially phlegm. A huge struggle to get it up...don't think I have to go into detail for this group, right? Anyway, we've found a system that sort of keeps it under control, involving...
  5. J

    Are there any online groups for teenagers who have a parent with ALS?

    Hi, all. My husband was diagnosed with ALS last July. Actually, that depends on who you ask -- two ALS/MND specialists diagnosed ALS without question, but husband chose to go with the current neuro who is doing a trial of treatment for MMN. His disease was progressing very slowly, relatively...
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