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  1. S

    numbness in front teeth

    I have been diagnosed with bulbar onset ALS. Lately I have been experiencing numbness in my upper two front teeth. My dentist did one of those panoramic x-rays and couldn't find anything wrong. Could this be at all related to ALS? While on the subject of ALS symptoms, lately I've been...
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    • Thread
    • als als symptoms bulbar bulbar onset dentist diagnosed onset saliva symptoms wrong
    • Replies: 3
    • Forum: People with ALS (PALS)
  2. S

    Ketones

    How do PALS feel about Ketone supplements? Not as a cure obviously but just about feeling better in any capacity. I get a lot of "recommendations" from friends. It's an internet thing. :)
  3. S

    L-serine

    A family member sent me a TED talks video by an Harvard PHD named Paul Allen Cox. He promotes the use of a nutritional supplement called L-Serine for motor neuron disease. Anyone have an opinion on this product? Its pretty cheap so I ordered some.
  4. S

    I thought I had ALS for two years

    After experiencing slurred speech, excess saliva, jaw tension and swallowing problems for several months I went to a neurologist who prescribed Mestinon for Myasthenias Gravas. It didn't work so she ordered blood work, did a rudimentary EMG, ruled it bulbar onset ALS and referred me to Johns...
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    • Thread
    • age als atrophy bulbar bulbar onset clinic data diagnose emg grant life mestinon mri muscle neurologist neurology onset progression riluzole saliva slurred speech speech support swallowing symptoms work
    • Replies: 8
    • Forum: Could this be ALS?
  5. S

    saliva management

    My VA doctor wants me to try Atropine eye drops to control my saliva. Swallowing eye drops seems a little odd. Anyone here using this method for saliva control?
  6. S

    Virginia becomes 11th "right to try" state for expirimental drugs

    I guess this is a good thing except insurance won't pay Virginia becomes the 11th state with right to try laws ( link removed contains ads)
  7. S

    excess saliva

    What do you other PALS take for excess saliva? My neurologist prescribed me a transdermal Scopolamine patch for its side effect of drying up saliva glands. It seems to work okay but the co-pay is a little pricey and I've started getting nose bleeds. Not sure that is related but certainly an...
  8. S

    question for vets

    When you began losing your speech what alternatives did the VA offer if any? My VA center here seem totally ignorant about ALS. Or I haven't gotten to the right person yet. They were recently rated worst in the country for appointment lead times. I still don't have a PCP (since November) so...
  9. S

    from Washington University

    Anyone seen this? Heart drug may help treat ALS, mouse study shows
  10. S

    Dynavox versus Model Talker

    I am about 25% along in banking my voice with Model Talker based on something I read here. My speech therapist however mentioned something called Dynavox. Anyone know the difference between these two? Also I'm a little fuzzy about the talking devices. I assume they would all be...
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