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dusty, please forgive me if i have overstepped my place.. i promise i will leave. and you're right, i am having sensory, but i am also having motor. i am beyond weak, my tongue pulsates, my arms feel like they weigh 5x as much and i am having problems moving my hands. just so happens i...

Tillie, i do appreciate the response. I'm not trying to re-explain or argue. i don't want this horrible disease. no one does. I'm just really scared, the web/site don't explain symptoms very well at all. i can feel my tongue pulsate/vibrate, i have weakness/fatigue, fascinations, having...

Thank you for your response gooseberry. i really appreciate your time. I don't know if I am even describing it right. It is a surreal experience. i feel like i am losing muscles and maybe others are compensating in a way. i can type on a keyboard but i can't really feel my hands move. I...

i forgot to add that i am experiencing weakness. i wouldn't even bother stopping here if i wasn't.

Hi all, Let me start by saying, i know those of you suffering with this hideous disease struggle on a daily basis and responding is difficult. i appreciate any advice. (I've donated and will continue to do so) a few months ago i had severe back pain on one side that felt like i had hot coals...