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    Patti is dead

    Thank you, everyone. :-)
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    Patti is dead

    Hi, all, Patti died last night from respiratory arrest. She had a good quality of life until her sudden and too-soon departure. I was just barely getting to know you all. Best of luck on your journeys. Calvin
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    Free to a good home ... or any home for that matter...

    How about swapsies? My PALS is easier going, but I'm tired of dealing with female drama. Maybe I'd get along better with a guy, even a grumpy one. At least the way a guy thinks makes sense to me. ... Here's to greener grass! >:-P
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    The Downward Slide

    Today is one of the sad days. Well, one of many sad days in a row. Now that we have most of the equipment she needs, Patti won't use it much, not nearly enough. I can't make her. Once she was a thriving person who needed some practical help from time to time. Now I think she's a dying person...
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    App Rates Accessibility of Public Locations

    I thought of something like this. I'm glad someone has developed it. ------------- People With Disabilities Can Easily Find Accessible Spots With This App Inspired by his own experiences, a filmmaker has created an app to help people with disabilities. Jason Da Silva was diagnosed with...
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    Bo Stern blogger of ALS & Caregiving

    I just read her post. It was really what I needed today. I'm not as far along as she seemed to be in the post ... but I'm heading down that slippery slope. Today I am angry, frustrated, and feeling woefully inadequate to the task. And I've hardly left the house for weeks. I need my time away...
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    So discouraged I can't stop crying

    Heather, if you think counselling is something you'd like to try but have trouble getting out of the house because of the need to keep close by (I know I do), there are psychologists who practice online these days. Real, licensed ones with PhDs! If you want meds for depression or anxiety, I...
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    Is that a banana in your pocket or are you just happy to see me?

    No, that's not a banana .... :-P
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    The Good and The Bad

    Hi, Heather and Everyone. Thanks for your support and good wishes. Patti and I are both doing well today, feeling physically well and happy. Our biggest challenge today is that Patti isn't taking well to her new equipment. I've figured out that she's tactically sensitive and probably a bit...
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    The Good and The Bad

    Thank you, everyone. I'll try to keep focused on the person and the present. ... I think what's really getting me is that for the first time the probability that Patti will die is sinking into my brain. It's no longer intellectual. I'm going through a grieving process, and I'll likely go through...
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