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I think I might be losing my mind! Twice now while driving, I got confused about reverse and drive! I put my car in reverse, thinking it was Drive. Needless to say, I'm too afraid to drive! I also sat out two paid off pants for my son to get dressed. It took a while to figure out I was wrong...

I survived another ALS clinic! My Dr. Brought up rilusole. I'm wondering who all has taken it. I was just worried about the liver aspect since I lab to use my love a while longer, and did you feel nauseous?

I really want to take my family on a cruise! I want to go while I can still walk and talk. I don't have much money, so I feel guilty that I want to spend what we do have on making good memories! Almost like I'm being irresponsible. I feel guilty when I hear people tell my kids they need to step...

Although I'm not in a chair yet, I was thinking how nice it would be to have the disabled parking available so I wouldn't have to walk so far. Then I looked at the designated spots and they weren't closer at all, just next to a wheel chair accessible area to the sidewalk. I also noticed, they...

For those that still have their menstrual cycle....As if ALS isn't bad enough, when it is that time of month, it seems to make my legs so much weaker and tire more easily! Feels like instead of having 20lbs weights on my legs, I have 60lbs weighs on! I keep thinking I'm so grateful I still have...

My Dr was telling me about a group of Mathematicians and computers geeks that have used algorithm to tell patients of ALS how they will progress and at what rate. Would you want to know?

When do they count your disability as started? At the onset or at diagnosis. And what sort of paper work from the dr. Should I ask for?

I had a job as an independent contractor, working 7 days a week. I had a terrible migraine to the point that it exacerbated any ALS symptoms I have. I was stumbling everywhere, like I was drunk and my hand wouldn't work at all! It was so crazy! Anyhow I couldn't work, had to get a cocktail of...

I'm usually very positive, but finding it harder and harder lately! ALS has stolen so much from me already and I'm still just at the beginning! I lost one of my jobs because insurance won't cove me driving patients if I have ALS. My other job is threatening to let me go because I'm moving...

I'm wondering if anyone else has this crazy symptom. I feel like I have to yawn all the time and it's hard to complete the yawn. My oxygen levels are normal so is not a breathing issue. My neurologist said it's an ALS thing but didn't explain. I hate this symptom because I come of as so rude...