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Thank you for all your advice and kind words, it helps a lot to get input from others. Mum is waiting for a feeding tube... They had said they was going to put her to sleep... But her oxygen levels are too low, so are doing a local instead. I've told my children and the rest of our family...

ThankYou... Mum has stated she wants to stay where she is, or at least the building. We are looking to move her to the ground floor. She has friends there and they have a care team that are available 24hrs a day. They will need training to deal with mum, but they have said that it's good to keep...

Thank you... Giving my mum the diagnosis was hard, but she is taking it at the moment better than expected. i believe she is feeling slightly relieved to have a diagnosis for all the systems that the GP could not understand. Phoning my brother and sister, plus the rest of the family has been...

Just wanted to update, Mum has had her tests and confirmed MND... Mum has agreed to have a feeding tube fitted, which should be happening mid week. They are putting a care plan together so that mum can stay where she is living for as long as she can. They are also doing breathing function test...

Thank you for your kind words, my mum went into hospital yesterday, They are running lots of tests on her to fully establish what is happening too her, mum has been told that the speech therapist and the dietician will be coming to help her. hopefully we can establish what her needs and...

I'm 39... No I'm not living with her and our house is not big enough or suitable to accommodate. :(

That is my fear... My mum moved into an over 55's building last year to make things easier on her, they have a great team there that help with dressing and showering ect, but the falls happen in her home... No room for wheelchair in there :( and once they have her diagnosis I'm wondering if they...

I forgot to mention, her speech... So hard to understand her. Mum says it's like mouth full of cotton wool, and her tongue is all ripply like one of those slides at fair grounds with the bumps in. :cry:

Hi, I took my mum too see her neurologist yesterday, and he thinks she has anterior horn cell disease... He wanted to admit her to hospital there and then for further diagnosis but lack off beds means she has to wait until today or tomorrow. My mum has been slowly changing for the last 10...