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  1. T

    Question about life if a cure is ever found.

    It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
    • Texans 2014
    • Thread
    • breathing caregivers cough assist cure death depressed disability feeding feeding tube food hope insurance kids life love money muscles night paralyzed research sleep treatments ventilator work wrong
    • Replies: 9
    • Forum: Current caregivers
  2. T

    Ground Hog's Day

    Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
    • Texans 2014
    • Thread
    • back children eyes family feeding grant heart hours life love night paralyzed peg respite sleep van ventilator work
    • Replies: 8
    • Forum: Current caregivers
  3. T

    Possible Breakthrough-MAYO Clinic

    Has anyone heard anything about this study? Amyotrophic lateral sclerosis - Overview - Mayo Clinic Mayo Clinic/St. Jude/UT Austin/Northwestern/many more Sounds promising. Way too complicated for me to even try to explain.
  4. T

    ALS Familia question

    My PALS was diagnosed in Sept 2011. I am not aware of anyone else in his family that has or had ALS. His mother passed a year and a half ago and a family member came across an old letter that she had filed away about a family member who had died showing some symptoms of ALS probably 75 years...
    • Texans 2014
    • Thread
    • als children diagnosed family family member info medical person with als symptoms symptoms of als test
    • Replies: 2
    • Forum: Current caregivers
  5. T

    Embarassed to ask but need to know!

    My PALS was diagnosed Sept 2011. Prob had it a year earlier. Started in his hands and was slow moving until about 2 years ago and it went crazy. He is paralyzed except for his neck and a little shoulder which still allows him to drive his power chair. He has always had a really good outlook...
    • Texans 2014
    • Thread
    • back breathing chair children cough assist diagnosed dying eye eye gaze eyes feeding feeding tube hours life love paralyzed peg power power chair quality of life shoulder sleep treatments vent
    • Replies: 15
    • Forum: Current caregivers
  6. T

    Secondary Insurance

    My husband has ALS. He was diagnosed 3 yrs ago. He has medicare and our medical expenses have not been too much....yet. He will be getting a feeding tube within the next few months. My question is...Does anyone know what the best supplemental insurance is for those of us with ALS?
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