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Hi, I was misdiagnosed with cervical myelopathy and underwent surgery to fuse c5 and c6 to c7 the surgery was a success and my foot drop improved however my balance got so much worse causing me to fall like a tree and injure my head and face. I obtained a walker but after so many falls,my bulbar...

I agree, it's hard to adjust...I take 80 mgs/day (20mg 4x's/day). When I tried to decrease it to try something different I ended up with painful muscle spasms in my r hamstring ,,. I had to sit on the edge of my seat. Even after I increased the dosage the pain lasted about a month and a half...

Exciting new for sure Max, hopefully soon we can all do a collective sigh if relief :-)

Sorry to hear you didn't qualify, Nikki ... I thought they wanted people who had ALS less than 2 yrs. Maybe they will accept you eventually. I wish they would hurry up for all our sake.

I agree Chris, I fell numerous times but didn't break any bones. I did however split my head open taking 10 staples to close the wound and two days later went down on my face and shortly after bulbar onset. I got a rollator and although I fell less, I still fell rollator and all. I got diagnosed...

Schmidhogan, google "did an Israeli company discover a cure for ALS". It seems the drug called NurOwn is what makes the difference. There's clinical trials in Massachusetts now. I don't think they would go to the expense of trials without evidence it may lead to a cure.

Hi everyone, I've been reading some of the posts here and can relate to the frustrations with this disease. On one hand we are lucky we don't have ALS but we have a longer life to live with poor quality and lack of independence. On top of that we are at the bottom for any clinical trials. I read...