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  1. A

    Excessive Burping

    Anyone else experiencing lots of burping? I'm on a PEG tube and mostly don't have a problem but occasionally, I could have an entire day where I'm burping continuously and it's irritating! I don't know why this happens or if there's a way to stop it.
  2. A

    Stowing the PEG tube

    My husband's PEG tube is about 12" long, so we struggled to find a way to "stow" it between feedings without using tape. Eventually, I took out his dogtag chain from Navy days and asked him to put it on. Then I took an old clip style earring and attached it to the chain. Now, after feeding...
  3. A

    Dental Concerns

    My husband was diagnosed in July 2014 and already has frequent swallowing and choking episodes. I'm wondering if this will present a major problem if he has his teeth cleaned or other dental procedures. Has anyone out there been through this?
  4. A

    Need "Planning Ahead" Advice

    My husband is newly diagnosed and right now has pretty good mobility. Is this a good time to discuss what room we'll eventually use for him and his equipment, what modifications we should get started on, what type of bed and mattress will be most comfortable? How can I know whether our...
  5. A

    ALS Men Please Advise!

    My husband was diagnosed with ALS by our neurologist on July 23, 2014. While I'm sure that he understands how serious this is, he doesn't talk about it with me or anyone. He wants me to tell friends and family that he has a neuro-muscular problem and is getting medication for it. His...
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