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We purchased a brand new Q-6 Edge for Grumpy to have as a 2nd chair. He was 5-10 and weighed 227 when they went through the fitting process. He probably spent a total of 50 hours in it. It wasn't to his liking after he received his Permobile. It does NOT have a Roho cushion just a gel/ memory...

Grumpy (Randy) passed away today Aug 4 at 8:46 am. He gained his wings peacefully in his sleep with me holding his hand just as we both hoped he would go. There are no words to describe what I am feeling. Although I feel such loss, I also feel relief that he is no longer suffering. He was an...

I am not even sure where to begin but just needed to talk to someone who might actually understand! Grumpy has been declining pretty steadily for the last few weeks. We started on a bowel care program through the VA because he needs an enema and bowel stimulation in order to go. It went well...

I have 5 Invacare Slings that were purchased for Grumpy that we do not use either because they are way too large or were the wrong type. They have never been used. I will ship them via US Mail to any PALS that has a need. They are free but I am asking that you read the description carefully so...

Hi everyone. It has been awhile since I have been on but wanted to give you a quick update on my Grumpy. There have been so many changes since the first of December when I was here last. Grumpy (Randy) has only movement on 3 fingers of his right hand now. He is totally reliant on the Trilogy...

Grumpy and I want to wish everyone a happy Thanksgiving! Today is also Grumpy's birthday so needless to say it feels like our home was invaded by everyone and their brother. Since tomorrow is my birthday, everyone decided to drop in even if they didn't stay for dinner. We cooked a 22 pound...

Grumpy has been in the hospital for the last 6 days. Transferred us from the VA at homes to here in Cleveland. They seem very knowledgeable about ALS and have 3 other ALS patients here now as well. I haven't gotten much sleep as he isn't sleeping well and prefers me to the aides doing his care...

Unfortunately Grumpy had a fall on Wednesday night. Thankfully nothing broken or strained according to the doctor. He has some pain in his right calf but nothing he will take meds for. Honestly I am afraid. He seems to be losing all the strength in his right leg. He has so much atrophy on the...

I have searched the threads and I am sure this has been discussed and I just can't find it. After contacting the PVA just yesterday and talking with our new rep from there he said he would pass our information on to the ALS clinic coordinator at the Cleveland VA. Today she called and is fast...

That was the day my world was rocked by news that husband had ALS. Ours is a complicated story so I will try to make it short. For the last 4 years we have traveled the country for our job, working together, playing tourist on the weekend and coming home 10 days at Christmas and if we happened...