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  1. C

    Totally convinced I have this.

    I hadn't realised my Dr had even referred me! Hopefully this referral won't take long
  2. C

    Totally convinced I have this.

    just thought id update. Im in A+E because i managed ro work myself up. Because i have a bizarre heart they wanted ro run some tests. I told them all about mt weakness and the Dr said ir was quite definate and she also said that i had a notable amount of atrophy on my right calf. She has said...
  3. C

    Totally convinced I have this.

    Thanks guys. I have had a normal brain mri 3 months ago. I was referred because of a headache which lasted 9 weeks. I went to see a headache specialist who did some tests and referred me - I told him about my weakness also. My headache eventually went and mri was normal so nothing else required...
  4. C

    Totally convinced I have this.

    thats really harsh! Yes, it tells me I am concerned! What do you mean do something good for someone else. I do! I am a loving mum to 3 young children and wife and a caregiver to my mum and disabled brother. I do various voluntary work with mums and toddlers and I help other swhere I can. I dont...
  5. C

    Totally convinced I have this.

    The nhs is a wonderful thing so i know i will be ok there. I am just so concerned for my family, not meaning to sound wrong but my nerves are litterly shot to pieces just worrying about this. I will keep praying!
  6. C

    Totally convinced I have this.

    I know, hence why i am here. I do have life insurance but not health insurance :(
  7. C

    Totally convinced I have this.

    Yes I have both clinical weakness and atrophy confirmed by GP. He said he felt it was "reasonably mild" but it doesnt feel mild to me. I know that this started about a year ago. The only thing keeping me going is that if it was nmd then it would have progressed furthur by now (although it did...
  8. C

    Totally convinced I have this.

    I know you come across people like me who think they have this awful disease but please dont get cross with me, I am simply someone who is incredibly afraid. My symptoms are: shakiness in leg - this alerted the dr to the true weakness (right side) arm weakness (right side) - can lift a...
  9. C

    Totally convinced I have this.

    Hi Guys This is my first post but sadly I think i will be joining you :( Im devastated! Last year I started getting poorly, I then became very anxious about my health and ended up with alot of tests and found to have a heart issue and crohns disease. I now however have this over me. LAst...
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