Search results for query: *

Hi everyone, I haven’t been on the forum for awhile. I wanted to say hi and let you know how I’ve been doing. In a few months, It’ll be five years since my diagnosis. My progression has been slow and I can still walk and talk. I can walk unaided for about 30 feet before I wear out. If I...

I don't know if I'm in the minority on this. But lately, tipping has begun to really irritate me. It started about 10 years ago when I walked into a restaurant to pickup my phone order. I went to the register, gave my card, and was given the receipt to sign. It had a tip line on it. I...

I'm not sure if this has been mentioned here. If you log on to Amazon and put (smile dot) in the url before amazon, you can chose a charity. It's called amazon smile. A small portion automatically goes to the charity you chose. Mine is ALS. Automatic and no charge. Same exact site. My...

Lately, I've noticed a difference when I swallow. I'm limb onset and have not had any problems with swallowing or eating. Now, at times, it kind of feels mushy when I swallow. Especially in the morning. And, I've had several occasions where saliva will just slide down the wrong pipe if I'm...

I had a fall today walking up one step. No railing, cement floor and alone. Fortunately, only a sprained wrist and a scrape. I discovered PALS don't fall like we used to. We just go down. Weak arms no longer help break the fall! Reminder: Falls are extremely dangerous to PALS.

I would like to wish all our Jewish PALS a happy Rosh Hashana! (Happy New Year)

Had clinic on Wednesday and was given another prescription for a PWC. They wrote a script last time, but I didn't follow through. I have an older worn PWC that was given to me, so I let the script lapse. The clinic has their own DME. But after he told me he only has Quantum wheelchairs, I...

I was driving today and when I stepped on the brake, my foot started going up and down by itself. This is a new one for me! Is this Clonus? Thanks, Marty

I have had my trilogy for 15 months. During this time, the trilogy has had several technical failures that needed repair. I'm waiting for a repair now. My question is, do most of us get new or used machines? Or, is it whatever they have in stock at the moment? Cosmetically, mine looked very...