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When I was first diagnosed, the neurologist told me it was either MMN or ALS. He sent me for three ivig infusions while waiting for my second opinion appointment with the ALS specialist. Three months later, I was officially diagnosed with ALS and was told by the specialist that if I had a...

One of my favorite quotes.

Just got the first vaccination. The ALS clinic sent me an invitation a couple of days ago. Two hour drive to San Antonio. Nice day for a drive. Very quick. Going back in three weeks. Good luck to all! Marty

This has been quite a week in Austin TX. No power or water for days. Snow, ice and extremely low temps. Stayed as long as I could. Got down to 39 degrees in the house Trilogy out of power. Had to keep my African Grey parrot and Holly (sheltie) in the car with heat on for warmth...

Got a call from the ALS clinic telling me to come in for the vaccine. That's great news as I haven't heard of any vaccine available in Texas. The clinic is in San Antonio and I live in Austin. About a 100 mile drive. I'm not going anywhere anyway. Told them I'll wait till it's local.

Thanks Laurie. the only thing she does, is check the usage. I do all my own adjustments thanks to five years of training from you! The pulmonolgist also knows this and occasionally asks me if I've made any changes. Marty

Not much going on around here. Very bored like everyone else. Lost my balance last week. Hit the wall hard with my chin. Dislocated my jaw and couldn't close my mouth. I reached in my mouth and under my chin, jiggled and popped back in. Extremely painful, but getting better. Kevin, I've...

The RT just left. Has to ask her to put her mask over her nose. Told me her aunt refuses to get vaccinated because she thinks there's a chip in the vaccine. Have a good idea who they voted for! Lol

No vaccine in Texas. I'm patiently waiting for my turn. I have an RT that comes once a month. She's around a lot of patients and I've been mainly isolated. I'm thinking about telling her not to come over till she and I are vaccinated. it's also a waste of time as I can relay anything about...