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  1. P

    Secondhand smoke and ALS

    So there's mounting evidence that smoking increases your risk of developing ALS. Cigarette Smoking Linked to Lou Gehrig?s Disease So I'm wondering about secondhand smoke. I don't have any of the common risk factors thrown around in reference to ALS. But I was born into a smoking family in an era...
  2. P

    Public versus private forum

    Hi all, I've mentioned it before, but I wanted to start a new thread since I haven't found a search phrase that got me to a previous discussion of this topic. Why are these forums totally public? Is there a strategy there? Because I feel exposed, and I definitely do not participate as much or...
  3. P

    Alternatives to "Walk to Defeat ALS"

    Five minutes after getting my diagnosis, I was handed an ALSA folder with a big "Walk to Defeat ALS" image on the front. My symptoms are starting in my legs and my walking is suffering; I already can't run anymore. I cannot walk long distances. So I was not amused. I would like to be amused...
  4. P

    An insurance subforum?

    I'm sorting through old posts about SSDI, Medicare, insurance, and thinking it might be nice to have a subforum devoted to this. We all have to navigate this issue after diagnosis. Just a thought.
  5. P

    Daily schedule of rilutek

    I searched, but there are so many threads on rilutek and I couldn't find anything about the daily schedule. I'm finding that I can either reliably take it every 12 hours or I can reliably take it on an empty stomach, but not both. I can get close, but not bang on. So has anyone gotten feedback...
  6. P

    not totally glad to meet y'all

    Hello all, I was just diagnosed on Tuesday. It was not totally unexpected, although my journey has been a quick one compared to many. With hindsight, we've tracked my symptoms back to February. I was in NYC with a friend and she kept chiding me for walking slowly, very much contrary to my...
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