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  1. NvrGiveUp

    ?Anyone know of a good "mouse" for people who have trouble using a regular one?

    ?Anyone know of a good "mouse" for people who have trouble using a regular one? Hi everyone... T has been having a rough couple of days this week. Hopefully she will feel better soon, she was not sleeping very well the past few days. To top it off, her upper arm is really hurting too. We...
  2. NvrGiveUp

    Eyes have dark circles - should we be worried?

    Thanks CJ... I think she has had some changes in her face ... just slightly. If I compare to her before ALS then I would probably say a big change. But thinking of the past few months not really much change. I'll ask the neurologist. Thanks again :)
  3. NvrGiveUp

    Eyes have dark circles - should we be worried?

    Thanks CJ and Glen for your quick responses. She definitely does not take off her mask at night or else she probably would not wake up in the morning :O I was reading someone else had a pinched nerve or something from their mask ... not sure if that would do it or not. When she is awake...
  4. NvrGiveUp

    Eyes have dark circles - should we be worried?

    Hey all, T's eyes have had dark circles the past few days and we are getting worried. She did not hit her head or anything like that. We wore thinking that maybe how her mask is hurting the bridge of her nose is maybe also giving her the black eyes? Please help if this has ever happened to...
  5. NvrGiveUp

    aches in the buttox

    T's butt is disappearing, but one thing she has been using for a while now is sort of like a heavy-duty water cushion. It is just heavy-duty plastic (looks like a float almost) that you fill up with water. A mini-water bed for her wheelchair. She got it in Brazil, not sure if they have here...
  6. NvrGiveUp

    New type of Bi-pap Mask for those having problems

    That sounds really cool. I don't know if my PAL will be scared of it though... will ask. Does anyone out there have a good way of dealing with the sore spots from the mouth/nose mask? T just always has imprints on her face that take a while to go away after she wakes up from the morning. Her...
  7. NvrGiveUp

    How do I sign for my PAL?

    Thanks so much everyone... guess the power or attorney will have to be done asap. I think I will try legal zoom and I know someone who is a notary... thanks again :) I like the stamp idea too... but I think this signature thing is going to require signing an electronic pad thingy. Thanks again :)
  8. NvrGiveUp

    How do I sign for my PAL?

    Hey everyone, I know this is probably a pretty silly question, but I was wondering what everyone else does for their PAL once they are unable to sign their name anymore. Most of the time I have just signed T's signature for her, but soon we will have to go to an appointment where she is...
  9. NvrGiveUp

    back from a long absence

    thanks Cindy It's amazing what coffee can do. Today is better, I'm trying to focus on my job search. I really hope that I can find a good job in this area that will allow me to take care of T and make life as nice as possible. It is really taking a while right now to find a good job. My...
  10. NvrGiveUp

    back from a long absence

    tough day alone Today is a tough day. I've really been missing T a lot today. It's hard to be here without her, hard to be separated... even though I know that it is what she wants. Selfish I know. I just feel like a blob today. I've watched a lot of TV to melt my brain with. Anyone else...
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