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Thank_you everyone for your comments. They have meant a lot. My sister just joined this forum under JillinAK. Please check her out and encourage her please. She means everything to me. Yes she did get her second opinion and it was confirmed she has ALS.

HiYa Max! Miss you too!

I pray you can still do some of those things on your wish list. I love you!

Thank You so much for your post, videos and ideas Max. It pains me that any of you have to be on this forum. Yes I love my sister so much and I am having a more difficult time dealing with this ALS than she is for the moment anyways. I have been reading many of the testimonies shared here and it...

Hi Maybe 'Mark 2' would be more appropriate. I am new here as well. My sweet wonderful sister, Jill 59 yrs old was just diagnosed June 25, 2014 by the Forbes Norris MDA/ALS Research Center in San Francisco, Ca. I was visiting her for the whole summer in AK. I left Oct, 2013 and she was fine...

Hi I am praying you have been misdiagnosed. My 59 yr old sister was just diagnosed with ALS 6/25/14. My heart is breaking! I am happy there is a forum I can come to and read everyone's experience and inspirations! God Bless everyone here!

My sister who just turned 59 yrs. old, Jill, was diagnosed with ALS on 6/25/14 by Forbes Norris Research Center in S.F., CA. They started her on Riluzole or Rilutek. They recommended she get a stomach tube put in since she had already been having trouble swallowing this whole time as well. The...