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At the risk of being told to grow a pair, i have to ask about abuse and neglect. My wife/cals has made it clear that she hates taking care of me. I try to ask politely when i need something and i always wait patiently while waiting for her to get to my requesr...or i at least ACT patient. I...

I'm about sick to death of the DIHALS "please help me" crap. Almost to a person they don't listen when told to see a PCP, don't listen when told they don't have ALS (and keep trying convince others that this new symptom changes their DX), and just on and on. If they effing want it so bad...

Got my PEG (technically a RIG) put in on Thursday last. More pain than I expected but it's no longer hurting too bad. My question: is it normal to be able to smell my stomach contents? It's kind of disgusting to me...def not enjoying that.

I lol'd. I think you will too... Grandpa The Gambler The IRS decides to audit Grandpa, and summons him to the IRS office. The auditor was not surprised when Grandpa showed up with his attorney. The auditor said, "Well, sir, you have an extravagant lifestyle and no full-time employment, which...

Ted and his wife were working in their garden one day when Ted looks over at his wife and says: "Your butt is getting really big, I mean really big! I bet your butt is bigger than the barbecue." With that he proceeded to get a measuring tape and measure the grill and then went over to where his...

A very old man lay dying in his bed. In death's doorway, he suddenly smelled the aroma of his favorite chocolate chip cookies wafting up the stairs. He gathered his remaining strength and lifted himself from the bed. Leaning against the wall, he slowly made his way out of the bedroom, and with...

...is killing me. I did a search of the forums and mostly read that pain is not ALS. I understand that ALS doesn't cause pain per se, but I'm surprised to find almost no one complaining of shoulder pain similar to mine, in my most affected right arm. This is, quite literally, some of the worst...

So, here i am, enjoyinng a lttle break from home, with the family, at the Marriott in San Antonio. Time for breakfast and i go to sip my lovely Americano from Starbucks (not my fav but itll do), and i drbble out half a mouthfull all over myself! Crap! Im just sick of trying to take a sip of...

So weak today...I was trying to just hold a tape measure up for my wife and my arms gave out after only seconds. Even with my walker I'm constantly at risk of giving out. Starting last night, the back half of my tongue just felt 'foreign'...like I no longer know how it's supposed to work. Had...

So I go in for chair measurements on June 29 and have to wonder what I'm going to use to get the thing from place to place. I've seen posts recommending different vans but does anyone use one of those cranes in the bed of a pickup truck? Tucson does get some rain but we're pretty dry...